Monday, May 5, 2008

Vision Loss Redux Part X I - update

"looking good!", the wizard says to me today. Things seem to have stabilized for the last several weeks. So, tomorrow I move down to 30 mg of prednisone. Still a very high dosage, but half of where I've been. This is the lowest I've been since this whole mess started. Every time I would move to 40, I would have this is pretty significant. It probably has much to do with the other meds he put me on. To his knowledge, this med - cellcept - has never been used for eyes...but I guess I'm a pretty rare case.

He's convinced again that I have Susac's. He's going to call Dr. Susac and get the scoop.

Also, I'm seeing a rheumatologist that is sending me down the Georgetown U to her mentor. We'll see if he can shed some light on the mystery patient.

Also, she's the one that started me on this diet. Basically, the prednisone is beginning to give me diabetes and I need to watch what I eat. She said I didn't have to be strict with it...but I decided...why not? I was overweight before I started on the pred, and added 20 lbs. after. So, I'll be eating no carbs for the next two weeks during phase 1 of the South Beach diet.

I've never done this before, so I see it as an exercise in self-discipline. I will let you know if I cheat, honest! I'll twitter about my progress, and you can follow if you're some sort of diet voyeur, or if you're just interested. This could be fun...a new challenge!

Although...I missed dinner tonight because I worked late and had a meeting...and I'm feeling a little hungry...

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